Saturday---Holy crap, the weeks are just flying by! November is nearly over, Christmas is right on top of us. I want to get the Christmas tree and all the decorations up this weekend, notice how I say "I" want to, and you all know that what I mean is "H" will have to do it, right? I usually LOVE the holidays, and I really do this year also, but not being able to get up and do it myself will be a bit of a problem, I think. H is the worlds best at helping me, every year he helps with all of it, but when faced with doing it all alone, and me sitting and directing...it could be interesting--to say the least. I did bring the whee chair home with me for the weekend, maybe that would help with this job....
I am working today, but from home. I really managed to get alot done yesterday but I was at the garage way too long and I am paying for it this morning. I seem to have hit a plateau with the pain and the worsening of my symptoms, although I don't really see how my legs could get any weaker, but my arms don't seem to be getting any worse than they are already, and they are holding up pretty well. I can generally make it at work until around two, and then I am finished for the day. I can absolutely do no more. Except for the days that I can do nothing at all. Damn, that makes zero sense, does it? Well, anyway, what I am trying to say is that I am getting into some kind of a routine at work, if I can work at all, I can usually work from about 8-2, with the help of the wheelchair. The pain level fluctuates from moderate to off the scale. My arms are beginning to shake with weakness after a full day of work, and I look like an alcoholic needing a drink. I am really, really hoping that the surgery can take all of this away, but I have been doing some reading, and it seems that there are many people in the predicament that I am, and permanently in wheelchairs with cervical myelopathy. Obviously, I want better results. Even something in between would be better. On one hand, the surgeon tells me he can fix it. In the next breath, he says it is about a 50/50 shot. So, we will see. I guess anything would be an improvement. I have decided that whatever the outcome, I will live with it, and do the best I can. I am not giving up or giving in. But surely you all knew I wouldn't. :)
I am going to have a good Saturday--and I want all of you to do the same.
ps...good heavens, i just noticed that i wrote "whee chair" in this post and it cracked me up. Lord, it's really far from that...but I'm going to leave it, it does make one's mind think of waaay funner things than it really is. LOL
8 comments:
Yes, time sure does seem to fly Jamie, even when we're not having that much fun! I can only imagine how hard it is to not be able to accomplish the things that you are used to doing, when typically you are such a motivated person. I'm so glad you are set up to work from home now, that's a little less physically taxing, I'm sure. Your "I can and will handle this" attitude is so inspiring, and reminds me to quit whining. And yes, what other choice do we really have but to deal with what life throws our way. (Nobody said we have to do it gracefully, right? ! :-) The countdown will soon be on until your surgery, and we're believing it's going to make a difference. I'm so glad that H is there to help you with everything, I'm sure he'll get that tree up just fine with your direction. Being there for each other is what life is all about.
You're a lucky girl to have your DH around. Mine tends to get angry if he "has" to do anything and on top of that demands accolades and praise if he *does* do it. Blech.
What is the date of your surgery? How long will you be in the hospital?
Summer, the surgery is scheduled for Dec 11th, and it should just be an overnight thing. :) I dread going through it, I just want to "blink" myself past it!
Jos---we all have things worth whining about, mine is no worse than yours....problems are problems, pain is pain. You are getting an early start on your Saturday----if I could sleep in, I would! Thank you for the always inspiring words, they always help. :)
It was nice to see your comment in my blog block this morning. Sorry to hear that you are facing surgery during the holidays. I'm not very familiar with medical 'stuff' but I googled "cervical myelopathy" and it does NOT look user friendly. Hang in there. We'll all remember you in our prayers and thoughts. Again, thanks for the comment. Visit again soon and so will I.
good heavens jamie... you crack my ass up!
:))
i was gonna say somethin about the whee chair. but you yanked the fun right out from under me.
anyhow--- i do hope you really are having a happy saturday--- doing something you love to do.
latah....
Happy Thanksgiving Jamie!!!! I wish we could decorate together...it would make it so much more fun, wouldn't it?
Dec. 11 huh? gotta remember that....
You are lucky to have H to help you. LOL about the whee chair thing.. its great that you still have a GREAT sense of humor!
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