We moved two weeks ago. I just finished unpacking the very last box, just now.
I hate moving. There was a time when I enjoyed putting the new place together, but not anymore. Somehow, this place turned out way better than I expected or put the effort into. I just got lucky. However, there is not one square inch of unused space in the cabinets, the closets, the cupboards, or any other C word that means "stuff your shit in here". This will be a subject for a future blog post, a real rant and tantrum I am working up to. :)
The physical effort nearly killed me, the pain is up near 13 1/2 on a scale of 1 - 10.I have used more drugs than I am supposed to, so that always leaves me short at the end of the 30 day supply. Either way I suffer, sometimes it's just worth it to do it this way. Ideally, my pain meds would work out just right, the way they are prescribed and are supposed to. But sometimes my pain is so bad, so intense, that suicide sounds like a good idea. I try to steer away from that kind of intensity.
This move was a good idea. Mark and I have not been happy the past year and a half, the last move that I insisted on was the bad idea. So, we are back where we were in 2008. The same building, two floors up, almost the same apartment.This is the place that everyone thought was such high class, such high dollar rent. Yes, it is. But it is still less that the last place, and there - in the suburbs, there was no shopping on the grounds, no restaurants, no bars. Here, at least I can watch other people have fun. There is real life outside my four walls, even if there is no life inside them.
And so that is all. My carpel tunnel left hand is completely numb now, and my carpel tunnel right hand is not as bad but still acting up. I shall "talk" to you all later.
Happy Weekend. :) Love and hugs.
Saturday, April 13, 2013
Wednesday, April 03, 2013
Remember me?
I've been away for so long, you all probably don't remember who I am. If you do have a fragment or sliver of a memory of me, then I will have to tell you that I am not the person you all know anymore. Changing has not been what I wanted, it has been completely out of my control. I don't look the same, I don't think the same way, and I surely don't FEEL like I used to. I have turned into a person I don't know, feeling things that are totally new, wondering where the person I used to has gone.It's funny - I think most of us are often not impressed with the person they are, always wanting more... I know I didn't appreciate who I was, always thinking that I could do better, be better, certainly look better. I took so many things for granted...and we never know that until we have lost it.
The most upsetting (horrifying) thing for me has been the physical changes. The parts the whole world can see. I know that this sounds really superficial, but really it isn't. Most of us define who we are by what we do, how we look, and the feelings that we have for ourselves and for others. Well now physically for me --- I look awful. Seriously. I see someone else in my mirror, actually asking the one staring back at me to bring back the old version. I tell him ( my mirror is a man) that I can't continue this physical downward spiral... he never reply's but sometimes I wonder if he laughs at me. :) Heaven knows I would laugh at me, too.
I am now good at doing nothing. There is nothing left to define myself by what I do, since I literally do nothing. If anyone counts reading, or staring into space a definitive career or even a quality, then I will be at the top of my game. I miss my job. I miss leaving each morning and being so happy to return at night. I spent so many years being irritated that I had to interact and talk to others. I have always been a loner, wanting to be left alone in so many situations. So now, I have my wish. I want to publicly state for the record that being alone blows. Yes, I have a husband, he leaves early each morning and returns late in the evenings. I thank God for him each day. I feel sorry for anyone who has to deal with this new me on a regular basis.Yes, I have grown kids but the truth is, it's hard for me to even let them see me. I cannot avoid it all the time, and I know it's wrong to feel this way, but I am actually ashamed of myself and I don't want them to know that, either. I am well aware that none of the changes in me are my fault, and there is nothing I can do about it. That doesn't make it any better for me, certainly I would work hard to get back to the old me if there was even a tiny chance. I can barely walk, I limp and hobble and I am bent over to the left side, sometimes nearly in half. I have gained so many pounds, due to medications and lymphedema and pop tarts. Doctors tell me it's no big deal, it's not my fault, but those that know me well know that I'd rather be dead than fat. I don't even look normally fat, it's all in the middle, showing up there overnight. Literally. You've no idea what it's like to go to bed a small, normal size and wake up looking seven and half months pregnant.
Surgeries are in my future. My spine has moved (?) three inches to the right, which is impossible,and oh so painful, just ask any doctor. The only cure for that is extensive surgery. Screws and plates and cages are involved. I don't know when yet and I don't know how, but I do know that I am not going to walk bent to the left forever. No - spines don't move. Unless you have had a spinal stimulator put in your body with (leads) wrapped all around your spinal column. That is my theory, not the doctors. But spines don't just move for no reason. You know I did all the research on this damned stimulator before I had it put in. I didn't want in the first place but my doc was sure it would help the pain. It did help for quite a while, until I developed lympedema, and then I couldn't take it, not when my left leg swelled up to the size of a hundred year oak tree. The doc did say that the leads were causing the swelling problem, people don't just develop lymphedema. Those that are fighting cancer can get it, but it is a secondary problem. I have it as a main problem. It causes giant swelling in my leg and abdomen. So there is the reason that I look like I am having a baby. Just for the record, I want to say this never happens. You don't just develop this problem. Of course, there is no cure. Just a series of compression garments and manual stimulation to release the water. No thank you. There is one certified physical therapist that can do that here, she is part of the cancer center downtown. I have resisted this treatment so far, it just sounds too far out to even imagine. Obviously, I went to the one remaining doc at my old pain clinic and we discussed having the stimulator removed. Makes sense, right? Sure he will take the little box in my lower hip out. But the leads --- the things causing my problems? No, they stay in forever. They wrap themselves all around the spinal cord and trying to take them out is way too risky. Dangerous, even. In all my research, no one ever once mentioned that. I asked about having it removed if it didn't work the way they said, they told me sure it can be taken out. But not the wires. They neglected to ever say that. And I was too stupid to ask.
Enough for now. I know this is awful to read, and I certainly understand if you can't make it through. I just wanted you all to know why I am not around. I am sad, I am sick and I am fed up.
I do think about all of you and plan to one day get back here like normal. I love and miss you, my friends. :)
The most upsetting (horrifying) thing for me has been the physical changes. The parts the whole world can see. I know that this sounds really superficial, but really it isn't. Most of us define who we are by what we do, how we look, and the feelings that we have for ourselves and for others. Well now physically for me --- I look awful. Seriously. I see someone else in my mirror, actually asking the one staring back at me to bring back the old version. I tell him ( my mirror is a man) that I can't continue this physical downward spiral... he never reply's but sometimes I wonder if he laughs at me. :) Heaven knows I would laugh at me, too.
I am now good at doing nothing. There is nothing left to define myself by what I do, since I literally do nothing. If anyone counts reading, or staring into space a definitive career or even a quality, then I will be at the top of my game. I miss my job. I miss leaving each morning and being so happy to return at night. I spent so many years being irritated that I had to interact and talk to others. I have always been a loner, wanting to be left alone in so many situations. So now, I have my wish. I want to publicly state for the record that being alone blows. Yes, I have a husband, he leaves early each morning and returns late in the evenings. I thank God for him each day. I feel sorry for anyone who has to deal with this new me on a regular basis.Yes, I have grown kids but the truth is, it's hard for me to even let them see me. I cannot avoid it all the time, and I know it's wrong to feel this way, but I am actually ashamed of myself and I don't want them to know that, either. I am well aware that none of the changes in me are my fault, and there is nothing I can do about it. That doesn't make it any better for me, certainly I would work hard to get back to the old me if there was even a tiny chance. I can barely walk, I limp and hobble and I am bent over to the left side, sometimes nearly in half. I have gained so many pounds, due to medications and lymphedema and pop tarts. Doctors tell me it's no big deal, it's not my fault, but those that know me well know that I'd rather be dead than fat. I don't even look normally fat, it's all in the middle, showing up there overnight. Literally. You've no idea what it's like to go to bed a small, normal size and wake up looking seven and half months pregnant.
Surgeries are in my future. My spine has moved (?) three inches to the right, which is impossible,and oh so painful, just ask any doctor. The only cure for that is extensive surgery. Screws and plates and cages are involved. I don't know when yet and I don't know how, but I do know that I am not going to walk bent to the left forever. No - spines don't move. Unless you have had a spinal stimulator put in your body with (leads) wrapped all around your spinal column. That is my theory, not the doctors. But spines don't just move for no reason. You know I did all the research on this damned stimulator before I had it put in. I didn't want in the first place but my doc was sure it would help the pain. It did help for quite a while, until I developed lympedema, and then I couldn't take it, not when my left leg swelled up to the size of a hundred year oak tree. The doc did say that the leads were causing the swelling problem, people don't just develop lymphedema. Those that are fighting cancer can get it, but it is a secondary problem. I have it as a main problem. It causes giant swelling in my leg and abdomen. So there is the reason that I look like I am having a baby. Just for the record, I want to say this never happens. You don't just develop this problem. Of course, there is no cure. Just a series of compression garments and manual stimulation to release the water. No thank you. There is one certified physical therapist that can do that here, she is part of the cancer center downtown. I have resisted this treatment so far, it just sounds too far out to even imagine. Obviously, I went to the one remaining doc at my old pain clinic and we discussed having the stimulator removed. Makes sense, right? Sure he will take the little box in my lower hip out. But the leads --- the things causing my problems? No, they stay in forever. They wrap themselves all around the spinal cord and trying to take them out is way too risky. Dangerous, even. In all my research, no one ever once mentioned that. I asked about having it removed if it didn't work the way they said, they told me sure it can be taken out. But not the wires. They neglected to ever say that. And I was too stupid to ask.
Enough for now. I know this is awful to read, and I certainly understand if you can't make it through. I just wanted you all to know why I am not around. I am sad, I am sick and I am fed up.
I do think about all of you and plan to one day get back here like normal. I love and miss you, my friends. :)
Friday, February 08, 2013
Again --- a Friday!
They just keep right on rolling along, don't they? The days of the week I mean, particularly Friday's. I blink - it's Monday, blink again, there is Friday staring me right in the face, one more time. I must say that it beats the alternative all to hell, but occasionally, I would like to see time slow down. I know that's not going to happen, but I often wish it would.
So, what's happening here, in my world? More doctors, more worries, more pain, more concern. New issues seem to be cropping up lately, none of them good. My spine has moved. Seriously -- it's almost three inches to the right, no where near the middle. No, I do not have scoliosis, I never have. I have always had a perfectly straight spine, right up the middle of my back, right where it belongs. The current condition of it is baffling my doctors, as usual, because nothing I have to deal with medically is normal. So, I have more tests and ex-rays and bullshit coming up on the 20th. To say I am sick of this crap is hardly descriptive enough. I am nearing a meltdown. Every effing time I see a doc, there is a new problem, Every time. This new spine issue leaves me wondering so many things, but mostly I want to know, how in the hell can that happen? Doesn't something have to be broken or some damned thing for that to happen? Gah. Blenheim. Ugh.
Enough. Enough of that.
My lovely daughter had a birthday yesterday. We were at her place last evening, it was great to see my little fella's. They are so much fun to be with. The things that come out of their mouths always, ALWAYS make me laugh. They so obviously have fun --- and when Pa Pa comes to visit, well he's almost as good as Santa Claus. :)
Today, I must really try to get a few things accomplished. I can tell my week has been very hard on me, this place of mine is quite the sty. My kitchen is a mess with dishes literally sitting on the counters, laundry piled pretty high in that little room. Kitty litter...oh my the kitty litter. One thing I cannot do is run the vacuum so that part must be handled by Mark this weekend. Oh the joy --- I get to clean if I can remain upright!
Even though I covered this in a comment on my last post, I want to say thank you ever so much to you all that read here. I have the very best friends. You try so hard to lift me up -- and that's no minor task in these days of fatty mcbutterpants. You seem to understand my whining and crying and I love you so much for that.
Please have the best Friday ever. I'm out. :)
So, what's happening here, in my world? More doctors, more worries, more pain, more concern. New issues seem to be cropping up lately, none of them good. My spine has moved. Seriously -- it's almost three inches to the right, no where near the middle. No, I do not have scoliosis, I never have. I have always had a perfectly straight spine, right up the middle of my back, right where it belongs. The current condition of it is baffling my doctors, as usual, because nothing I have to deal with medically is normal. So, I have more tests and ex-rays and bullshit coming up on the 20th. To say I am sick of this crap is hardly descriptive enough. I am nearing a meltdown. Every effing time I see a doc, there is a new problem, Every time. This new spine issue leaves me wondering so many things, but mostly I want to know, how in the hell can that happen? Doesn't something have to be broken or some damned thing for that to happen? Gah. Blenheim. Ugh.
Enough. Enough of that.
My lovely daughter had a birthday yesterday. We were at her place last evening, it was great to see my little fella's. They are so much fun to be with. The things that come out of their mouths always, ALWAYS make me laugh. They so obviously have fun --- and when Pa Pa comes to visit, well he's almost as good as Santa Claus. :)
Today, I must really try to get a few things accomplished. I can tell my week has been very hard on me, this place of mine is quite the sty. My kitchen is a mess with dishes literally sitting on the counters, laundry piled pretty high in that little room. Kitty litter...oh my the kitty litter. One thing I cannot do is run the vacuum so that part must be handled by Mark this weekend. Oh the joy --- I get to clean if I can remain upright!
Even though I covered this in a comment on my last post, I want to say thank you ever so much to you all that read here. I have the very best friends. You try so hard to lift me up -- and that's no minor task in these days of fatty mcbutterpants. You seem to understand my whining and crying and I love you so much for that.
Please have the best Friday ever. I'm out. :)
Friday, January 25, 2013
Friday .
When I was a working woman, I loved Friday's SO much. They always meant so much to me, a long, hard week nearly over, many things accomplished so I could take it a little easy on Friday. Usually had lunch brought in from somewhere on Friday's and that was special, too. The other days I ate something brought from home, usually canned soup. Friday meant that I could dress more casually than the other days, not that I dressed up every day by any means. But I would wear my t-shirts with the company logo, or the polo shirts that were provided. And jeans... definitely jeans. I miss the feeling of Friday alot. Yes, I know that every day should or could feel like Friday now, but they don't. I miss working so much, more than I can explain. I miss being a part of something, I miss the people that I worked with, I miss the car business --- it is such a fun business. Never a dull moment, always something strange or funny happening. :)
But today is Friday in my new world. Usually Mark brings something home for dinner -- so that is my new perk for Friday. Yea --- I made it through another week of nothing. Of hurting. Of pain. Yea!!!
I'm out.
But today is Friday in my new world. Usually Mark brings something home for dinner -- so that is my new perk for Friday. Yea --- I made it through another week of nothing. Of hurting. Of pain. Yea!!!
I'm out.
Monday, January 21, 2013
Stuff.
A quiet weekend, but good. Dinner with my kiddos and spouses, fiance's, children. Too late for the boys to eat, so a bit of chaos at the restaurant. The usual. It was fun, if noisy. I hadn't been out of the house for quite some time so just being out was good. I just am no good with the cold. This past weekend and the coming week will be wind chills of below zero so I believe I will be in, for sure.
Tomorrow is a lumbar puncture. Spinal tap if you want to use the horror movie title. Either way, I don't like it. I had one many years ago, nothing if not traumatic. One slip of the plastic needle that is miles long, and well -- there I go.I'm sure it will be fine, I just hate it. I hate any of the "procedures" that I am subject to lately. Like I told my herd of doctors, I don't care what you call it, what label you use. I am so far past that ---- but according to my neurologist, if a new and different label can be used then new and different medications can be used. Uh-huh. New meds are just what I what I want.
I say the hell with all of that, let's talk about something better. Something exciting. The problem is, there is nothing exciting happening in my life. Unless of course you count that my daughter is having another baby in May. Which most of you already knew. And then we could count that my youngest son Jordan got engaged on Christmas. That is super exciting, too. And then Jordan, again my baby -- found out that he and Tegan, his beautiful fiance', are having a baby in August! My baby is having a baby! the talk sure turned quickly from weddings to babies. I'm not sure when the wedding will be now but I couldn't be happier. Next Christmas, there will be two more babies playing under the tree! Omgosh, time passes so fast. Those babies will be here before you know it. I so can't wait to hold them and kiss them.
So that's my exciting news. I pray that everything is fine, easy and wonderful with both moms and babies.
That is all and I am out. Happy days to all of you. :)
Tomorrow is a lumbar puncture. Spinal tap if you want to use the horror movie title. Either way, I don't like it. I had one many years ago, nothing if not traumatic. One slip of the plastic needle that is miles long, and well -- there I go.I'm sure it will be fine, I just hate it. I hate any of the "procedures" that I am subject to lately. Like I told my herd of doctors, I don't care what you call it, what label you use. I am so far past that ---- but according to my neurologist, if a new and different label can be used then new and different medications can be used. Uh-huh. New meds are just what I what I want.
I say the hell with all of that, let's talk about something better. Something exciting. The problem is, there is nothing exciting happening in my life. Unless of course you count that my daughter is having another baby in May. Which most of you already knew. And then we could count that my youngest son Jordan got engaged on Christmas. That is super exciting, too. And then Jordan, again my baby -- found out that he and Tegan, his beautiful fiance', are having a baby in August! My baby is having a baby! the talk sure turned quickly from weddings to babies. I'm not sure when the wedding will be now but I couldn't be happier. Next Christmas, there will be two more babies playing under the tree! Omgosh, time passes so fast. Those babies will be here before you know it. I so can't wait to hold them and kiss them.
So that's my exciting news. I pray that everything is fine, easy and wonderful with both moms and babies.
That is all and I am out. Happy days to all of you. :)
Tuesday, January 15, 2013
Asleep at the wheel
It's Tuesday, I generally like Tuesdays. Today - I'm not so sure. I have an appointment with physical therapy today --- at the Lymphadema clinic. I am so not excited to go, apparently their method of "fixing" my leg involves manual compression, among other things.The compression or the "other things" do not sound even slightly interesting.Also, apparently this therapy will be billed against my regular health insurance, and since this is the new year, I have to meet $2000 before I get any sort of help.Because I already owe thousands in medical bills, I am not sure I can go at all. I will fin out about it today, but i am sufe is sjj 99899999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999999 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888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888 8888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888888999999999998 And so, once again, I fell asleep at the keyboard, This is what happens every time I try to write a post. Bleh. Have a very happy day.
Tuesday, January 08, 2013
Pillow talk - just you and me
You know, I don't sleep much. An hour or two, here or there. My most comfortable sleeping is done sitting straight up --- so much pain, otherwise. Now --- if someone would invent a bed that a person could sleep in standing up --- you would have a million dollar product. At least for me...but I digress....
I guess since I don't sleep, it makes sense that I don't dream, or at least don't remember dreaming. However, last night, I had the dream to end all dreams. It was the kind that was so wonderful, so unbelievably awesome that I kept going back to it. I have only been able to do that a handful of times in my life. I swear, this dream had to have been hours long, all broken up.
I really can't remember the little details. I honestly can't tell you all that were present, I only remember a few. But there were others...and whomever I was with, whomever was by my side, that person was made for me. That person was meant to be with me, was a part of me, was my heart and soul. I belonged. Truly BELONGED. Right there, wherever it was that I was, I was meant to be there. I wish so much I could say the right words to make anyone understand...no matter what I was, what I look like, how old I was, in pain and sick or perefectly well, I fit right there. And that was what was so completely mind blowing. So truly wonderful that I didn't want to wake up. I wanted to go with them...forever.
Just a dream. That is all.
I guess since I don't sleep, it makes sense that I don't dream, or at least don't remember dreaming. However, last night, I had the dream to end all dreams. It was the kind that was so wonderful, so unbelievably awesome that I kept going back to it. I have only been able to do that a handful of times in my life. I swear, this dream had to have been hours long, all broken up.
I really can't remember the little details. I honestly can't tell you all that were present, I only remember a few. But there were others...and whomever I was with, whomever was by my side, that person was made for me. That person was meant to be with me, was a part of me, was my heart and soul. I belonged. Truly BELONGED. Right there, wherever it was that I was, I was meant to be there. I wish so much I could say the right words to make anyone understand...no matter what I was, what I look like, how old I was, in pain and sick or perefectly well, I fit right there. And that was what was so completely mind blowing. So truly wonderful that I didn't want to wake up. I wanted to go with them...forever.
Just a dream. That is all.
Wednesday, January 02, 2013
2012
My resolution for this year is being a way better blogger and blog friend. I have been really bad about writing, even reading. When I am sick, I want the world to go away and leave me alone to die. That doesn't work when I am ALWAYS sick. I cannot continue to be so silent in writing and just as bad in reading. I want you all to know that I truly have missed you. I have missed the feeling of being a part of something, and even though I know/knew that I wanted to write, I just couldn't. How often do you all want to hear me say how bad I feel, how sick I am, how very wrong all of it is? I couldn't/can't believe that you all wouldn't leave my page thinking "enough already". For that reason, among others that I have already explained, I gave it up. But I missed it. I missed all of my friends here. So, in this new year (where did '12 go, really?), I will do better. Pinky swear.
2012 was a bit of a blur for me. A pain-and-pain-drugs kind of blur. There were some high points but most of it was on an even keel---or bad. There was some bad.To put it all in a nutshell -- (why would anyone put a story in a nutshell?) just wondering. But anyway:
Spinal Stimulator. Painful surgery, even though done on an outpatient basis. Infection at the incision cite, of course. Helped my leg pain alot back then. This was my doctor - he put the stimulator in, I had been seeing him for more than a year-- my sis more than fifteen years. I trusted him and loved him as a doctor. The story made national news, you probably heard about it. It's wrong. He's being used now as an example and this case will set a precedent. It's just all wrong. If a doctor goes to prison for manslaughter of any kind, I think that doctors in general will be forced to treat their patients differently. Just my humble opinion. so most of the year, jumping around between pain doctors that were trying to fill in for my doc. Not fun and it was not good for me at all. Let me just say that in general, I hate doctors. However, you would never know that from the way I act when I see one. Blenheim. Then, once I had the stimulator in place, it was time to give some thought as to why my legs -- mostly the left -- were swollen all the time. Doctor after doctor and test after test, no one knew why. Eventually, my left leg looked like a melon at the knee, the rest of my leg as huge as my skin would stretch, as hard as a rock. Very painful. In the midst of all of that, I was sitting in my bedroom one Saturday night in the summer -- suddenly no movement of my left hand. I could move my hand down a little but not up. I couldn't hold onto anything, there was nothing I could do with it. I hurried to my neurologist, he knew immediately that it was brachial plexopathy.. Unknown causes but I knew that I had recently injured my upper shoulder where the brachial nerves are, one of my medications causes me to fall when the dosage is being changed, and that was what had happened.It also could be because I just have nerve issues, that's what causes most of my pain in my legs. Either way, the sensation of telling your hand and arm to do something only to find that it can't is quite strange. In a bad way. High dosages of steroids corrected that problem, eventually. It also took the swelling down in my legs. I had skinny legs again! Only to wake up one morning right after to find that my lower abdomen had swallowed a watermelon! No kidding -- I looked seven months pregnant, overnight! I still have that problem, and it seems to not respond to regular dieting. This fact alone is about to drive me over the edge. The leg swelling came right back, too, as soon as I quit taking the steroids. Now they have decided that I have lymphedema, Something else that I have to live with. It is causing swelling in my left leg -- that's the one that hurts so, so bad, somewhat in my right leg, and lower abdomen. I am seeing an extremely skilled physical therapist for it next week. I have read that they do manual compression to get the fluid out. Just great, effing wonderful.Personally, I had a good year --- both of my grandsons are awesome, and there is another boy on the way! I think she was secretly hoping for a girl this time, I know I was, but a boy will be just fine. One thing is for sure -- my daughter and husband know how to make beautiful, smart babies. I have an engaged son, that just took place, too. I am so happy for my kids, they mean the world to me. I would give anything though to be able to be the kind of grandma that I want to be. I cannot do much with them, but they love me. I still hold out hope that one day I will be able to do it all, pain free-even.. Someday.
So - this has been my life the past year. I am hoping there is a lot less medical in 2013. Not looking good so far, but it's way early.
Thanks for reading this - I know it's long. Have an awesome day. ;)
2012 was a bit of a blur for me. A pain-and-pain-drugs kind of blur. There were some high points but most of it was on an even keel---or bad. There was some bad.To put it all in a nutshell -- (why would anyone put a story in a nutshell?) just wondering. But anyway:
Spinal Stimulator. Painful surgery, even though done on an outpatient basis. Infection at the incision cite, of course. Helped my leg pain alot back then. This was my doctor - he put the stimulator in, I had been seeing him for more than a year-- my sis more than fifteen years. I trusted him and loved him as a doctor. The story made national news, you probably heard about it. It's wrong. He's being used now as an example and this case will set a precedent. It's just all wrong. If a doctor goes to prison for manslaughter of any kind, I think that doctors in general will be forced to treat their patients differently. Just my humble opinion. so most of the year, jumping around between pain doctors that were trying to fill in for my doc. Not fun and it was not good for me at all. Let me just say that in general, I hate doctors. However, you would never know that from the way I act when I see one. Blenheim. Then, once I had the stimulator in place, it was time to give some thought as to why my legs -- mostly the left -- were swollen all the time. Doctor after doctor and test after test, no one knew why. Eventually, my left leg looked like a melon at the knee, the rest of my leg as huge as my skin would stretch, as hard as a rock. Very painful. In the midst of all of that, I was sitting in my bedroom one Saturday night in the summer -- suddenly no movement of my left hand. I could move my hand down a little but not up. I couldn't hold onto anything, there was nothing I could do with it. I hurried to my neurologist, he knew immediately that it was brachial plexopathy.. Unknown causes but I knew that I had recently injured my upper shoulder where the brachial nerves are, one of my medications causes me to fall when the dosage is being changed, and that was what had happened.It also could be because I just have nerve issues, that's what causes most of my pain in my legs. Either way, the sensation of telling your hand and arm to do something only to find that it can't is quite strange. In a bad way. High dosages of steroids corrected that problem, eventually. It also took the swelling down in my legs. I had skinny legs again! Only to wake up one morning right after to find that my lower abdomen had swallowed a watermelon! No kidding -- I looked seven months pregnant, overnight! I still have that problem, and it seems to not respond to regular dieting. This fact alone is about to drive me over the edge. The leg swelling came right back, too, as soon as I quit taking the steroids. Now they have decided that I have lymphedema, Something else that I have to live with. It is causing swelling in my left leg -- that's the one that hurts so, so bad, somewhat in my right leg, and lower abdomen. I am seeing an extremely skilled physical therapist for it next week. I have read that they do manual compression to get the fluid out. Just great, effing wonderful.Personally, I had a good year --- both of my grandsons are awesome, and there is another boy on the way! I think she was secretly hoping for a girl this time, I know I was, but a boy will be just fine. One thing is for sure -- my daughter and husband know how to make beautiful, smart babies. I have an engaged son, that just took place, too. I am so happy for my kids, they mean the world to me. I would give anything though to be able to be the kind of grandma that I want to be. I cannot do much with them, but they love me. I still hold out hope that one day I will be able to do it all, pain free-even.. Someday.
So - this has been my life the past year. I am hoping there is a lot less medical in 2013. Not looking good so far, but it's way early.
Thanks for reading this - I know it's long. Have an awesome day. ;)
Sunday, December 30, 2012
So much to say, so little time...
The holidays are over. At least the ones that cause me to have to kill myself with work. I have never really considered the new year holiday to be a REAL holiday...I guess in my family, if I am not killing myself with house work and cooking, the day just isn't REAL.
So anyway, the holidays are over and I couldn't be happier about that. This was a full-family Christmas, all kids home, most under my roof for a good part of the week. I loved every second of it, but I am always near death by the time they are gone. This year was by far the worst, ever. I seem to forget that I am not well--- and honestly not able to do it all. I had terrific and tremendous help -- Mark has become my assistant in everything I do. I can honestly say, at least right now when I am not mad at him, that I don't know what I have ever done to deserve him, but I am very, very grateful for him. He has been right beside me, right with me now matter what, through all of the hell that has been this past year. Together, we have endured some pretty traumatic things, some mundane and expected things, many, many painful things, for sure. And so, with his help, another year of holiday traditions is behind us.
I have so many things I want to tell you all. I want so badly to do it right now, while the mood is with me..but in all of the other fun stuff - I have lost the use of half of my left hand and typing is really a problem. I will try and be more with it and write more often. I just can't do anymore now. Soon. I will be back soon. Hugs, ya'll. :)
So anyway, the holidays are over and I couldn't be happier about that. This was a full-family Christmas, all kids home, most under my roof for a good part of the week. I loved every second of it, but I am always near death by the time they are gone. This year was by far the worst, ever. I seem to forget that I am not well--- and honestly not able to do it all. I had terrific and tremendous help -- Mark has become my assistant in everything I do. I can honestly say, at least right now when I am not mad at him, that I don't know what I have ever done to deserve him, but I am very, very grateful for him. He has been right beside me, right with me now matter what, through all of the hell that has been this past year. Together, we have endured some pretty traumatic things, some mundane and expected things, many, many painful things, for sure. And so, with his help, another year of holiday traditions is behind us.
I have so many things I want to tell you all. I want so badly to do it right now, while the mood is with me..but in all of the other fun stuff - I have lost the use of half of my left hand and typing is really a problem. I will try and be more with it and write more often. I just can't do anymore now. Soon. I will be back soon. Hugs, ya'll. :)
Thursday, December 13, 2012
Once again.
And so, where do I begin?
I'm still here, still alive, still breathing. If I told you the truth, I would add that I am not always thrilled about any of it, but here I remain. My life has been on the downhill slide for a year now---and there is no end in sight. Yes, I am still married to the wonderful man, yes --- both of my grandsons are still beautiful and awesome (and there will be another one in May!), and yes all my kids are doing just fine. So I still count the blessings and all that, but to remain true to you, then I would have to say that I am doing the blessing counting less and less. My pain has become my constant companion and we just don't get along at all. Not at all. I have been dealing with the same old shit, and many, MANY new issues that are causing me to teeter along the line of life. One day when I have energy, I will explain all the downright complicated shit. Right now, I just want to tell you all that I have missed you. That I can now blog without worrying that what I might say here could cause the social security peeps to second guess how severely ill I am. I won that case without even going through the usual course of losing initially...then winning on appeal. There really was no question --- I applied, I received it. It's one of those deals where you know that there is no way you can work, but when the social security administration agrees, you suddenly find yourself thinking -- "holy schmankees batman, I must be sick"
I will leave you now with that. I really am not able to sit here any longer, but I will be back. I know that many of you are probably upset with my disappearing act, I do apologize. Until next time. J..
I'm still here, still alive, still breathing. If I told you the truth, I would add that I am not always thrilled about any of it, but here I remain. My life has been on the downhill slide for a year now---and there is no end in sight. Yes, I am still married to the wonderful man, yes --- both of my grandsons are still beautiful and awesome (and there will be another one in May!), and yes all my kids are doing just fine. So I still count the blessings and all that, but to remain true to you, then I would have to say that I am doing the blessing counting less and less. My pain has become my constant companion and we just don't get along at all. Not at all. I have been dealing with the same old shit, and many, MANY new issues that are causing me to teeter along the line of life. One day when I have energy, I will explain all the downright complicated shit. Right now, I just want to tell you all that I have missed you. That I can now blog without worrying that what I might say here could cause the social security peeps to second guess how severely ill I am. I won that case without even going through the usual course of losing initially...then winning on appeal. There really was no question --- I applied, I received it. It's one of those deals where you know that there is no way you can work, but when the social security administration agrees, you suddenly find yourself thinking -- "holy schmankees batman, I must be sick"
I will leave you now with that. I really am not able to sit here any longer, but I will be back. I know that many of you are probably upset with my disappearing act, I do apologize. Until next time. J..
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